Nathan had a 3 hrs appt at UCSF this morning to see the following doctors:
Speech Pathologist
Nurse
Genetics
Orthodontics
Plastic Surgery
First appt was with the Speech Pathologist. After evaluating Nathan, she recommends that Nathan should continue his weekly speech therapy . Nathan talks a lot and beginning to say short sentences such as mommy eating, Smeagol home and my book. He says a lot of words but most of the words are not as clear. He still leaves out the first letter of the word like ‘addy’ which is daddy or ‘ain’ for train or ‘anket’ which is blanket or jacket. Since we spend more time with Nathan, most of the time we know what he is telling us. But if he is with other family members they may not be able to understand what he is saying. March is the month when he will begin speech therapy again but we need to call his speech therapist in Napa to schedule.
After meeting with the Speech Pathologist, we waited for 30 – 45 mins in the waiting room. Waiting was boring for me but Nathan had a good time playing with the toys.
After 45 mins of waiting, we met with the Nurse and asked us how Nathan’s health and if he is eating OK, etc. Then we met with two genetics doctors. The genetics doctors were pretty much out of luck in getting answers from us because we really don’t know anything about Nathan’s family history. We only know that Nathan was dropped off at a hospital the day after he was born and he lived with the orphanage thereafter. So we only know about Nathan’s life at the orphanage and nothing about his bio family.
But what the genetics found after examining Nathan is that he has a heart murmur. From what they were saying, it kinda scares me because they made it look like it is something serious. So they called Nathan’s Pediatric doctor in Benicia to let them know what they found. We have an appt with his Pediatric doctor this Thurs late in the afternoon.
Then after another boring 30 mins of wait, we met with the final team: Orthodontics and Plastic Surgery. The Orthodontics looked at Nathan’s teeth. The surgeons who operated on Nathan’s palette looked at his mouth to make sure that the palette is healing properly. When Nathan turns 5 years old, he may need to have another surgery.
So overall, Nathan’s repaired palette looks good. But now I am just concerned about the heart murmur. Not sure why his Pediatric in Benicia didn’t hear this heart murmur when Nathan had a doc appt with her few months ago.